My new kind of beauty

I met yesterday a new kind of beauty : a strong willed, late 40’s woman with Down syndrome and uncorrected congenital heart disease; the one that gives the “blue” appearance, associated with long life living with low Oxygen .

Ill call her my “great blue lady “ because she is blue – cyanotic , and not supposed to be alive !!

Down syndrome associated with congenital heart disease has a low life expectancy .

But here she is , living among nuns , brought to emergency room by worsening hypoxia – low oxygen .

My first thought was to transfer her to a center dealing with adult congenital heart disease . But “my blue lady “ and her amazing family chose to stay with me

“ My blue lady “ is a smart , well functioning Down syndrome who .. first …liked my clothes . She said she known how sick she is, but her goal is to go on a trip to Florida .

I’m meeting a strong willed women, who should’ve been dead long time ago, living at 78% Oxygen, (normal more than 95%) , coherent and with clear short term goals .

I met her supportive , wonderful family , who allowed me to post these pictures

We did great together .

I healed her , temporarily and she taught me a new kind of beauty : Perseverance will always win ; beauty comes always from inside